My last post was a cheeky little affair, all about my recent indulgent behaviours when it comes to food. I knew that my fun may meet with trouble soon in the form of a naturopath. I knew that once I told her what I was getting up to that she would probably remind me of the issues around eating croissants and pies regularly for lunch.
When she asked about my 'diet' I quite cheekily shared about my lunch time indulgences and she seemed a little shocked. I explained that I believed that habit stemmed from a lack of appetite at lunch time, which meant I had to coax myself into eating via tantalising the taste buds. I was also dealing with a secondary issue of 'can't be bothered, too exhausted to prepare healthy food'. We both knew that things needed to change a little, my regular lunch time antics would have to be replaced with more nutritious options and the not so healthy options would need to reduced to a weekly occurrence.
I expected this to come up while at the Naturopath. However I got a little more than I'd bargained for during my appointment, I got confronted. The food was a non-issue, I've been seeing naturopaths for many years and the required dietary adaptations no longer scare me, so I didn't go in prepared to be challenged.
The difficulty started with me having to explain my current situation to the Naturopath. I had to back track and explain that I'd become seriously ill last year with hyperthyroidism and that the cause was dangerously high levels of iodine in a soy milk I was drinking. I went on to explain the symptoms I'd experienced- nausea, loss of appetite, vertigo, extreme weakness and fatigue, anxiety...(the list goes on). I explained how I had to leave my job because I wasn't getting better and that I was diagnosed with depression and anxiety and did not find the true cause of my condition until I'd been chronically ill for 6 months. Yes, it's an awful story (and for this reason I don't like telling it).
She was amazed and told me it was interesting to meet an actual 'case' from this disastrous soy milk debacle. She went on to ask if I'd had anger come up and listed a whole lot of reasons why I would- loss of income, loss of prime years of life, loss of good health, not being where I could have been career wise....
I felt myself struggling to hear what she was saying, it was almost as if she was telling me those things were going to happen in the future, I felt a disconnect from it being my reality. I became annoyed and upset at hearing her speak the words out loud; I knew them to be true, but did she have to say it OUT LOUD? It was an interesting reaction to have to hearing someone else speak about my reality. I spend so much time trying to focus on the every day issues of just living and getting on with things as best I can that I don't dwell on the awfulness of what I've experienced. I try to pretend that I am ok with where I am at and what's happened; because if I wasn't I might have to feel angry, hurt or some other kind of emotional pain. I might feel sorry for myself, I don't feel entitled to do so, because there are so many worse off than me.
Something else happened last night, I spoke with my sister about her upcoming wedding, it's 12 months away, but I was honoured to be invited to be her maid of honour six months ago. When she asked me I had hoped I'd be well soon, unfortunately that hasn't been the case and I have been pretty much unable to do anything to help. I haven't been well enough to travel and go shopping for her dress or the bridesmaid dresses. I haven't had the energy to offer much to anyone else, to get excited for others or offer guidance or advice. All of my energy right now goes into getting out of bed, feeding myself and putting one foot in front of the other. I hate to admit it, because it feels like a weakness, but it's true.
Thinking about my maid of honour duties are something I have been blocking out, in order to do so I pretty much had to pretend that my sister wasn't preparing for a wedding...and in order to do that I put up a wall between her and I. It only came down yesterday when I realised why the wall had been put up; to protect me from the painful reality that I'm not the maid of honour I would love to be for my sister. I am someone who is struggling with her own stuff, trying to get her health back on track, experiencing chronic fatigue on many days and living the rollercoaster life of someone recovering from long term chronic illness. It hurts, it makes me sad, but only when something forces me to look at it. Yesterday my eyes were opened to how much I practice denial or blocking out of things to try and 'keep going' each day, to survive.
As I once wrote here before, there comes a time when the pain of denial becomes greater than the pain of acknowledging the truth. Yesterday the tables turned and I was faced with the painful reality that everything is not ok, I am not 'just fine' with what's happened to me and it's not 'no biggy'; I often feel frustrated but can't pin point why. I guess it's for some of the reasons my naturopath pointed out and because I am physically a shadow of my former self, mentally, emotionally and spiritually I am different and I am constantly faced with challenges on every level of my Self, alot is required of me to recover, rehabilitate from this illness. It's true, there are many aspects of the whole thing that are shit. It's not very often I let myself think that, let alone say it, but I am allowing it today. On the up side, I am glad I've realised the blocking tactics that I was using to try and keep myself self from difficult emotions. The blocking was getting mighty uncomfortable...and in the long run it's not healthy.
The answer is writing, now I can ask any questions I like. Blogging without boundaries.
Showing posts with label fatigue. Show all posts
Showing posts with label fatigue. Show all posts
Tuesday, April 5, 2011
Sunday, February 6, 2011
Like a normal person
Yesterday I spent the day pretty much like a normal person. When you're unwell for an extended period of time, it's not uncommon to begin to compare yourself to what is 'normal'. Spending the day like a normal person is an exciting experience because it feels so good and it also signifies hope, that one day in the not too distant future you might just feel 'normal' all of the time.
In my mind a 'normal' person can get up in the morning at a reasonable hour feeling fairly refreshed from their sleep (not like they have just woken after a massive night out after just 3 hours sleep). A 'normal' person can get ready to leave the house without tiring, they can eat a standard kind of breakfast without feeling ill or thinking twice. When a 'normal' person leaves the house they feel ok, not like they want to curl up and sleep or as if their eyelids are threatening to close on them all of the time. They also feel relaxed, they don't worry about getting home soon or how sick they feel, they don't think twice about being on their way to a shopping centre because it's just so regular.
Yesterday I felt normal because I did all of the above with relative ease, once I was at the shopping centre I felt a little bit tired but not so tired that I wished to be at home, I was happy to be out. After an hour or so shopping I still felt ok and was still not wishing I could go home to rest, it was an enjoyable experience.
Upon returning home after many hours out and about with the boyfriend I did indeed feel tired, but not so tired that I also felt sick or that I needed to lie down and not get up for the rest of the night. It was a bearable tiredness that was not going to prevent me from feeling ok and continuing being 'normal'. The boyfriend decided he wanted to make dessert for the first time since we have begun our sugar free lifestyles. We decided to try a baked cheesecake, which involved a trip to the supermarket for ingredients. I walked to the supermarket without dragging my feet, as we walked up a slight incline I felt the muscles in my legs kick in and do what they're meant to. Just a week ago this same slight incline would have slowed me down and had me asking the boyfriend to walk more slowly, my muscles would not have 'kicked in' like a 'normal' persons, they would have gone weak and slowed me down.
We made dinner and dessert and enjoyed a nice evening in, because the cheesecake took so long to cook we ended up staying up late to be able to eat it. I was able to stay awake and felt just fine. I had successfully spent the whole day feeling reasonably well- awake and capable. I had been able to contribute to helping with housework, shopping, considering the planning of a mid year holiday and baking. Yesterday I hadn't had to make a choice between using my energy for housework or going shopping or baking, I had been able to do all three and it was a real thrill.
The other 'normal' thing that I did this week was work. I spent one day at work, helping at my parents' business. Do you know how long it has been since I have been in an office for work purposes? About ten months. I have not been involved in any official work or earned my own income (apart from a once off tutoring gig) in that long. It was a huge day for me to be up and ready for a 9am start and to deal with having to sit in the once place all day. I did feel quite tired by the end of the day and was glad that the job was not at all intellectually demanding, but I made it through.
All of this 'normalcy' has been made possible by my thyroid coming into balance, it was just two weeks ago that I was begging my specialist to let me stop taking the medication that was slowing my thyroid down (too much). She agreed that it would be safe to do so, I was going nuts dealing with the symptoms of an underactive thyroid; the worst of which was an extreme fatigue that had slowed me down to a near stop. With that fatigue came alot of disappointment and frustration that I was not yet better or feeling 'normal'. This 'hypothyroid' state was induced by the medication, just to make sure I would not return to the 'hyper' state (aka hell).
My hyperthyroidism was caused by the consumption of excessive amounts of iodine in a so called 'healthy soy drink' that was actually very dangerous. This is very relevant to my recovery, the theory is that once all of the iodine is flushed from my system and my thyroid has found balance it will remain that way.
Just 3 days ago, for the first time since my diagnosis in August 2010 my thyroid test results came back 'normal'. The results of my test go a long way to explaining why yesterday I had a normal day and why last week I went to work and felt kind of normal. The test results also signify hope for the future, that 'normal' days will increase from her on in and from there I will start to have energetic days where I feel completely healthy and then..one day...I will live an energised, healthy and balanced life. As you can see, 'normal' is very important to me.
I doubt I will ever again take for granted how wonderful it feels to be 'ok' and to have my body be able to follow through on doing the things I want and need to, in harmony.
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